Pretty All True, my accounts of having a baby with Down syndrome in the Former Soviet Union

October 1, 2008 at 2:56 pm 11 comments

October is Down syndrome Awareness month.

I have decided to tell my story about having Polly in Ukraine.  Posts will be pulled from my journals from that time and from about 45 pages of bad writing that have piled up in my hard drive.  Some names will be changed as I see fit.

If you are new to this series, I recommend starting with Day One and reading to the present installment.

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Oh and…

My kids love the “Olivia” books, about a cute little pig named, of course, Olivia.  In one story she gets up for show and tell at school and talks about going to the circus with her mother.  She claims that all of the performers and animals were sick and that she had to take over the entertainment.  At the end of her monologue her teacher asks,

“Olivia, is all of that true?”

And she answers “pretty all true”.

The teacher then asks her if she is sure.

Olivia’s answer is, “to the best of my recollection.”

That’s how I feel about these accounts.  I am telling them to the best of my recollection.  The words are pretty all true.

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Entry filed under: 31 for 21, Down syndrome, Fromer Soviet Union, Gillian Marchenko, Having a baby, Hospital stays, Olivia books, Russian, Special Needs, Ukraine.

Should I? Day One

11 Comments Add your own

  • 1. Rebecca Talley  |  October 1, 2008 at 5:10 pm

    Hi,

    I’m launching a new website and want to include stories of people with children with Down syndrome. If you’d like to submit your story, have me link to your story, or get more information, please email me.

    Thanks.

    Reply
  • 2. Anne Bayer  |  October 3, 2008 at 3:46 pm

    I am so happy to hear you will wirte about yoiur struggles with DS I am sure they will be insightful. I enjoy your efforts. And now with knitting mistakes I can always look at the sweater or whaterver and know it is mine form the errors. I have learned to love impertfection.

    Reply
  • 3. jennifergg  |  October 3, 2008 at 4:06 pm

    ooooh i am so excited to read! and i’m so proud of you!

    xo

    Reply
  • 4. Karimomtofourgirls  |  October 6, 2008 at 12:51 am

    WOW!! This story is so well written and beautiful. I couldn’t stop reading and felt like I was there with you. Can’t wait to read more. Thank you for sharing this wonderful experience with us!!

    Reply
  • 5. Alida  |  October 8, 2008 at 9:29 am

    Thank you so much for doing this!! I am sitting here in awe and eager for the next installment!

    Reply
  • 6. Ali  |  October 23, 2008 at 3:04 am

    Hey, I just read all your entries about Polly’s story, and is so well done written and cant wait to read the next lol

    hugs from mexico

    Reply
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