What we do
October is Down syndrome Awareness month. Last year during this month I wrote part of our story about having Polly in Ukraine and in the midst of her fighting for her life in those first weeks the news of her extra chromosome.
It was a cathartic month, writing about that experience, remembering tears and joys, sadness, darkness, light.
With Evie home just over two months, there’s no way I can blog every day this month.
But I’m going to do a few posts. And I’m going to get practical.
I want to talk about what we do; what I do as a mother of a child with Down syndrome. Parenting Polly and now Evie is different than parenting my other kids. I’d like to explain some of that.
It’s also strangely, beautifully the same.
What we do; Sergei and I, is the same thing most other parents do. We kiss boo boos, make dinner, screw up, and try to figure out 2nd grade math.
There are things we do for our kids with DS; it’s our kind of normal but not a usual component of every day life for a family.
But it’s what we do.
And I’m going to talk about it.