Polly update

October 29, 2009 at 2:41 pm 10 comments

Polly in hospital 001

Polly is doing well.

It’s hard to believe that a week and a half ago she was using both of her hands to lift up her right leg and move it.  As Polly was leaving for school this morning she was practically running out the door.

Looking at her a person would be hard pressed to see that she has Moyamoya and requires pending brain surgery.

Yesterday we took her to outpatient physical therapy at the hospital.  The therapist was impressed.  Polly’s large gross motor function in her previously paralyzed leg is almost fully back.  She encouraged us to work on Polly’s smaller movements, for her to continue to wear her SMOs (feet and ankle braces) and for her to keep moving, which does not seem to be a problem.

Our therapy assignments include making forts under the dinning room table, crawling up and down the stairs and tickling.  Really, that’s what we were told.  No problem!

So for now, Polly is back to regular life.  She doesn’t have a clue that next Wednesday (November 4th) she’ll be under anesthesia for her angiograph (a very involved test that will determine exactly where in her brain surgery needs to take place).  After that test, her first surgery date will be set, probably in the middle of November.

In an effort to prepare Polly for her upcoming stints in the hospital, I plan to purchase a play doctor’s kit.  We’d like Polly to realize that there are many things at the hospital that are done that do not hurt; blood pressure, temperature, checking reflexes. 

If you have any other ideas about how to prepare Polly, I’d love to hear them.

And of course, please continue to pray for her 1) that her little body will stay seizure and stroke free, 2) that God will guard her heart and mind, providing her peace and resilience to adjust to her life in the next few months.  Pray for Sergei and me that we will continue to trust God for Polly’s health and ultimately to maintain the understanding that not only is the Lord with us through this experience but that he cares for Polly, so much more than we can even fathom.

I am humbled by all the blogs and messages that have posted Polly’s button reminding us all to pray.  I am also attempting to keep the rest of our lives functioning normally; Elaina is going to brownies and Zoya needs to practice her piano.  Evie is back on board with her sensory diet and we’ve started her school evaluations now that she is three and has aged out of Early Intervention.  It’s challenging as four out of six of us are battling colds (thank God, so far Polly is staying healthy).

Polly has some big shoes to fill, health-wise.  So far, so good.

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Entry filed under: Hospital stays, Moyamoya, parenting a child with Down syndrome, Therapy.

Happy Birthday Evangeline Polly’s angiography test on Wednesday

10 Comments Add your own

  • 1. Deborah  |  October 29, 2009 at 3:52 pm

    Good to hear she is regaining her strength! I will keep praying for her.

    Reply
  • 2. stillgrowing  |  October 29, 2009 at 11:51 pm

    Hey Gillian–So proud of Polly and her progress. She is a determined little girl and I know that she has wonderful parents, sisters and friends to encourage her. Praying for you. Love, Donna

    Reply
  • 3. Bethany  |  October 30, 2009 at 12:21 am

    Oh gosh, praying hard for you guys! Talk about overwhelming! 😦

    Reply
  • 4. RK  |  October 30, 2009 at 4:17 am

    I’m very glad to hear she’s doing well. You guys have SO much on your plate! God WILL see you through!

    Reply
  • 5. Sally  |  October 30, 2009 at 4:31 am

    Wow, I just caught up with all this. I can’t quite believe it. Polly is on my prayer list. Hang in there. Sending love and hugs and prayer.

    Reply
  • 6. Barb  |  October 30, 2009 at 5:47 am

    Glad that Polly’s regaining her strength and is doing better. I’ll keep praying for all of you!

    Reply
  • 7. babette  |  October 31, 2009 at 12:27 pm

    i love looking at the pictures,like you said gill, it’s hard to believe
    just a week ago all this happened.we’ll keep the prayers coming!
    love to all
    aunt ba

    Reply
  • 8. Melanie Hollis  |  October 31, 2009 at 9:47 pm

    Just found this post….so happy to get an update. I have wondered about her so often, but know your plate is full.
    I am praying constantly for Polly. The Lord continually and
    faithfully brings her sweet face to my mind. I completely
    understand your apprehension, and pray the Father will
    continue to sustain you, give you strength, and show
    Himself mightily to you. He is in this. He has purpose
    in it. Standing with you, my new friend,
    Melanie

    Reply
  • 9. Bonnie  |  November 4, 2009 at 1:23 am

    Hey Gill – on of the Pathfinders ladies (Kati Howard) suggested getting an oxygen mask, several hair nets and masks from the hospital for her to “play” with. She said it helped their daughter before she had surgery when she was little. love to you all! B

    Reply
  • 10. Brigitte Van Nice  |  November 14, 2009 at 1:57 pm

    I nominated you for a blog award!! Go check it out on my blog!!!

    Reply

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